2019 North Carolina Chapter Care Services Survey

This survey will take approximately 10 minutes to complete: 2019 Care Services Survey

The Care Services Department at the North Carolina Chapter is interested in receiving feedback to assess and improve our programs and service delivery. 

The ALS Association North Carolina Chapter currently has a total staff of 14 that covers the entire state of North Carolina, serving approximately 525 North Carolinians with ALS at any one time. The Care Services & Advocacy Department attends 11-15 clinic days per month and offers 15 Connection Groups among many other responsibilities. We do a lot with a small staff! See our 2018 By the Numbers here: 2018 By the Numbers

Your input matters! Based on survey results from last year, we have added these services in 2018 and early 2019

.* Three Telephone Caregiver Connection Call times, giving caregivers more options to participate and they do not have to leave their loved one with ALS to attend.

1. 1st Monday of every month, 7:00-8:00 pm
2. 2nd Tuesday of every month, 12:00-1:00 pm
3. 4th Thursday of every month, 9:00-10:00 am
   Call in to: (312) 757-3121 Access code: 152-034-869 at any time during these hours

* An Emergency Preparedness mailing including an ALS emergency bracelet, EMS Professionals’ Handout and Emergency Preparedness Information Guide was sent out in August. (Those who came on to service after August receive an Emergency Preparedness packet in their ALS Association bag at clinic.)

EMS Professionals’ Information: web.alsa.org/EMSinfo

Emergency Preparedness Guide: http://webnc.alsa.org/site/PageNavigator/NC_8_EmergencyPreparedness.html

* Started a Wilmington Area Connection Group (meets at Church of the Servants, 4925 Oriole Drive, Wilmington, 3rd Thursday of the month from 6:00-7:30 pm)

* Started a Charlotte Area Connection Group (meets at Tyvola Senior Center, 2225 Tyvola Road, Charlotte, 1st Tuesday of month, 1:00-2:30 pm)

* Peer Support Program developed and sent out informational mailing in mid-January 2019. More information can be found here: www.alsnc.org/Local Care Services/Peer Support Program