ALS Ice Bucket Challenge Progress

 

Care Services

Our Chapter empowers people with ALS and their families by offering a wide variety of programs and services. Our services are often changing and expanding as we grow, so please check back often to make sure you are taking advantage of everything we have to offer.

Our Care Services Staff

Our staff of compasionate, experienced ALS professionals and Social Workers are available to help educate and support people living with ALS and their families.  Our staff is available Monday through Friday to answer any questions you may have. Please don't hesitate to call or e-mail us for more information.

Desiree Hodges, MBA, RN, CCRN, NE-BC
Vice President of Care Services & Advocacy
Email: desiree@alsnc.org
Phone: 704-412-3777
Clinics: Atrium Neuromuscular/ALS-MDA Center, 

Claudia Beirne
Senior Care Services Programs Manager
Email: claudia@alsnc.org
Phone: 919-390-0125
Programs: Equipment Loan Program, North Carolina Chapter Grant, Support Groups

Rachel Kecy
Care Services Programs Coordinator
Email: rkecy@alsnc.org
Phone: 919-390-0126

Alexandra Adams, BSW
Care Services Social Worker
Email: alex@alsnc.org
Phone: 336-757-2000
Clinics: Wake Forest Baptist ALS Clinic, Salisbury VA ALS Clinic

Lily Cola, MSW
Care Services Social Worker
Email: lcola@alsnc.org
Phone: 919-390-0120
Clinics: Duke ALS Clinic, UNC ALS Clinic

Joanna Nunez, MSW, LCAS, LCSW
ALS Association Chapter Clinic Liaison:
Email: jnunez@alsnc.org
Phone: 910-390-0851
Clinic: New Hanover ALS Clinic, Vidant ALS Clinic 

Support Groups

The ALS Association North Carolina Chapter holds support groups each month for persons with ALS, family and loved ones to provide support and to connect them with resources and individuals that can support them along their journeys. Click here to learn more about support groups.

For a list of the support groups we currently offer, please click here.

 

Peer Support Program

The peer support program is designed to connect those living with ALS and/or caregivers (active or former) who can share experiences and support.

For more information, please click here.

 

Chapter Grant

The grant program assists families in North Carolina with expenses that are not traditionally covered by insurance such as private insurance, Medicare, Medicaid and other assistance programs. It will cover, but is not limited to: Respite Care Assistance, travel costs to ALS clinics and research, home modifications, auto modifications, communication devices, environmental controls and generators for invasive or non-invasive breathing assistance. Recipients may apply for two grants per year in the amount of $750 each.

For more information or to apply for a grant, please click here.

 

Equipment Loan Program

The Equipment Loan Program operated by the North Carolina Chapter houses loaner durable medical equipment in four locations throughout the state which include power wheelchairs, manual wheelchairs, transport wheelchairs, rollators, power hoyer lift and shower wheelchairs. Equipment is delivered and picked up free of charge. If and when the equipment is no longer needed, it can be returned to the Chapter for use by other person living with ALS.

For more information about borrowing or donating loaner equipment, please click here.

 

In-Services

The Chapter care services staff is available for professional in-services to nursing facilities, home healthcare agencies, hospice and palliative care organizations. Our in-services utilize PowerPoint/video presentations and discussion.

For information on how to arrange an in-service training, please contact Desiree Hodges.

 

Support Our Services 

All of the services for our ALS families are available due to the generosity of many groups and individuals. By donating to our Chapter, you help us to help those families. Join a Walk team, plan an event that benefits the Chapter or just make a donation. As a non-profit, everything we do depends on our generous donors.

If you are interested in supporting our services, please click here.