- For People with ALS
Where to find help
- Newly Diagnosed
- ALS Registry
- Clinical Trials
- NC Clinical Trials
- Familial ALS
- Military Veterans
- Augmentative Communication
Support Our Services
- Help Fight ALS
Our Chapter empowers people with ALS and their families by offering a wide variety of programs and services. Our services are often changing and expanding as we grow, so please check back often to make sure you are taking advantage of everything we have to offer.
Our Care Services Staff
Our staff of social workers are available to educate and support by phone anyone in the community who is concerned about ALS. Particular support is available for families living with ALS. Our staff is available Monday through Friday to answer any questions you may have. Please don't hesitate to call or e-mail us for more information.
Claudia Beirne, Senior Care Services Programs Manager
Direct Line: 919-390-0125
Desiree Hodges, MBA, RN, CCRN, NE-BC, Vice President of Care Serivces
Direct Line: 704-412-3777
E Belleau, MSW, LCSW, Care Services Social Worker
Direct Line: 919-390-0120
Meg Whitaker, MSW, Senior Care Services Social Worker
Direct Line: 919-390-0119
Joanna Nunez, LCSW, Care Services Social Worker
Direct Line: 919-390-0851
Alex Adams, Care Services Social Worker
Direct Line: 336-757-2000
The ALS Association North Carolina Chapter holds support groups each month for persons with ALS, family and loved ones to provide support and to connect them with resources and individuals that can support them along their journeys. Click here to learn more about connection groups.
For a list of the support groups we currently offer, please click here.
The peer support program is designed to connect those living with ALS and/or caregivers (active or former) who can share experiences and support.
For more information, please click here.
The grant program assists families in North Carolina with expenses that are not traditionally covered by insurance such as private insurance, Medicare, Medicaid and other assistance programs. It will cover, but is not limited to: home care assistance (respite), travel costs to ALS clinics and research, home modifications, auto modifications, communication devices, environmental controls and generators for invasive or non-invasive breathing assistance. Recipients may apply for two grants per year in the amount of $750 each.
For more information or to apply for a grant, please click here.
The Equipment Loan Program operated by the North Carolina Chapter houses limited durable medical equipment in three locations throughout the state. The equipment includes rollator walkers, manual wheelchairs, transport wheelchairs and power wheelchairs, and is delivered and picked up free of charge. If and when the equipment is no longer needed, it can be returned to the Chapter for use by other person living with ALS.
For more information about borrowing or donating loaner equipment, please click here.
The Chapter care services staff is available for professional in-services to nursing facilities, home healthcare agencies, hospice and palliative care organizations. Our in-services utilize PowerPoint/video presentations and discussion.
For information on how to arrange an in-service training, please contact E Belleau at firstname.lastname@example.org
All of the services for our ALS families are available due to the generosity of many groups and individuals. By donating to our Chapter, you help us to help those families. Join a Walk team, plan an event that benefits the Chapter or just make a donation. As a non-profit, everything we do depends on our generous donors.
If you are interested in supporting our services, please click here.