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The North Carolina Chapter Grant Program assists North Carolina families with expenses that are not traditionally covered by insurance such as private insurance, Medicare, Medicaid and other assistance programs. It will cover, but is not limited to, home care assistance (respite), travel costs related to ALS clinics or research, home modifications, auto modifications, communication devices, environmental controls and generators for invasive or non-invasive breathing assistance.
→ TO BE ELIGIBLE FOR THIS GRANT, YOUR PRIMARY RESIDENCE MUST BE IN NORTH CAROLINA AND MUST HAVE A VERIFIED DIAGNOSIS OF ALS
*PLEASE READ THIS BEFORE COMPLETING YOUR REQUEST *
PLEASE FOLLOW STEPS BELOW TO BE SURE YOU ARE SUBMITTING REQUEST CORRECTLY
Step 1 - Check ALS Eligible Expenses list (pg. 2) to make sure receipt(s) you are submitting are on the list of eligible expenses (if they are not on the list, they are not eligible) and be sure receipts are between the acceptable date ranges for current period (dates below).
Step 2 - Complete Request for Funds form (pg. 3), Answer impact questions AND put a checkmark where it is required before you Read and Sign responsibility statement (pg. 4).
Step 3 - Attach COPIES of actual Receipt(s) that have already been paid for - You can use Mileage log or Respite Care Provider log if needed as receipts (pg. 5 & 7). PLEASE DO NOT SEND IN ORIGINAL RECEIPTS – SEND COPIES ONLY!
Step 4 - Return by email (scanned attachment), fax, or mail (info provided on pg. 4), the completed Request for Funds form with copies of receipt(s). Please retain a copy of your paperwork and original receipts. If you need extra forms, you can download below. You can also Contact a Care Services staff member and request by email or phone.
Step 5 - Receive check which can take up to 6 weeks. Checks are void after 90 days and cannot be re-issued. Please deposit when you receive. If you do not receive check after 6 weeks, please contact Claudia Beirne at claudia@alsnc.org or 919-390-0125.
Grant Periods |
Request for Funds form
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Receipts must be
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MUST be postmarked by: |
MUST be received In-House by: |
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1st (Jan. 21 – July 20) |
HARD DEADLINE: July 15 |
HARD DEADLINE: July 20 |
Jan. 21 and July 20 |
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2nd (July 21 – Jan. 20) |
HARD DEADLINE: Jan. 15 |
HARD DEADLINE: Jan. 20 |
July 21 and Jan. 20 |
Download Current Request for Funds Packet This includes procedure and all forms below
Download Current ALS Eligible Expenses List Please be sure to check this form to make sure expenses qualifty for reimbursement
Download Current Request for Funds Form This form MUST be completed, attached to an invoice/receipt and submitted for any reimbursements to be processed
Download Current Respite Care Provider Log This form is used by non-professional (cannot reside in pALS’ home) respite care providers. It must be completed by the care provider and sent in with Request for Funds form
Download Current Mileage Log This form is used to submit reimbursements for Mileage OR rental of vehicle/car service to and from ALS clinic appointments, North Carolina clinical trial appointments (when travel stipend not provided), Feeding tube, invasive ventilator and Baclofen pump procedures appointments ONLY. No other appointments qualify.