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  Monthly e-Newsletter of The ALS Association North Carolina Chapter

June 2017

 

Chapter News & Upcoming Events

 

NEWS FOR OUR NORTH CAROLINA COMMUNITY

Walk to Defeat ALS Logo

Walk to Defeat ALS this Fall! We're walking 80's style in Charlotte, Greensboro and Wilmington and we need YOU to register today & fundraise to help fund research & advocacy for those living with ALS and to honor those we've lost. The Walk is the #1 way to create a world without ALS. Come spend the morning making an impact in your community. Register today for a fall walk near you! walk.alsnc.org.

October 28, 2023 – Charlotte Walk to Defeat ALS, Symphony Park
November 4, 2023 – Greensboro Walk to Defeat ALS, Grasshoppers Stadium
November 11, 2023 – Wilmington Walk to Defeat ALS, Longleaf Park

80s walks sm banner


Volunteer at a Fall Walk! The countless hours of service from volunteers at our events across the state of North Carolina are so important to our mission. Many friends of the chapter will share the opportunity to volunteer with local groups they're involved with - churches, civic groups, book clubs and college organizations - to help spread the word about volunteer opportunities.  Please check out the Signup Genius links below and feel free to share!


The Annual Business Community Challenge is underway! The challenge is simple: we are calling on our local business leaders to accept the challenge and raise $2,500 by Friday, August 11th to help us Create a World Without ALS. We will recognize and celebrate all businesses who complete the challenge in the August 25th edition of the Business Journal and on our social media. To accept the challenge visit: business.alsnc.org

 

Registration is NOW AVAILABLE for The 14th Annual NC ALS Caregivers Conference! The Conference will be held on Saturday, September 23, 2023 at the Harris Conference Center in Charlotte!  For more information and registration, visit alsnc.org/conference.  

Caregivers Conference


Emergency Preparedness: As the old saying goes; the best time to prepare for an emergency is before it happens.  Please make sure that you review our Emergency Preparedness Guide 

 

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The FDA has approved the first new drug for ALS in 22 years!

The FDA has approved Radicava™ (Edaravone), the first new treatment specifically for ALS in 22 years. The drug was approved by the FDA less than a year after Mitsubishi Tanabe Pharma Corporation submitted a New Drug Application. The only other approved treatment specifically for ALS, riluzole, was approved in 1995.

Learn More
 

10 Ways to Help a Family Impacted by ALS

There are many ways to help families impacted by ALS. The ALS Association put together a list of ten ways to make a difference in the lives of people living with ALS and caregivers.

 

Education and Training for ALS Caregivers

For someone facing the challenge of becoming an ALS caregiver, there are many paths to gaining the knowledge and experiences they need to care for someone with the disease. Finding accurate and timely information can play a key role in equipping those impacted by an ALS diagnosis with the skills they need to provide the best possible quality care.

 

Getting Veterans with ALS the Benefits They Deserve

While veterans with ALS are entitled to benefits, they don't always receive them. But Earnest Hill, former member of the U.S. Air Force, is dedicating his life to changing that.

Chanel Hobbs: Living with ALS, In Her Own Words

Chanel Hobbs is a vibrant 54-year-old residing in Chester, Virginia. Determined to spread awareness of what it’s like to live with ALS, she is sharing her family’s personal journey in her own words.

 

Helpful Advice from One Caregiver to Another

Over the past years we’ve had many conversations and interviews with ALS caregivers, and while no two experiences are ever alike, there are often similarities. We thought we would share some of these caregiver stories and advice we’ve collected along the way.

 

“She’s Crazy Strong Inside”—A Young Woman’s ALS Caregiver Journey

When Tony got diagnosed with ALS, he and his wife Karen turned to each other to figure out their path forward, and they found they were better when they could face it together.

“I’ll Do This for You”—A Caregiver Story

David is living with ALS, and his wife Laura is his primary caregiver. As simple as it might sound, their conscious decision to truly LIVE with ALS is what has allowed them to face each challenge and each day, together.

 
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The ALS Association North Carolina Chapter
4 N. Blount St., Suite 200, Raleigh, NC 27601

(919) 755-9001

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