Thank you for helping me reach my Walk to Defeat ALS® fundraising goal! The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
I am walking in memory of my mom. She is MY true reason for walking. She was formally diagnosed in January 2018. After months of tests, bloodwork, scans, and doctor visits, they ruled out everything else so that they could "rule in" ALS. THIS is one of the main issues with ALS. There is no test! You can only rule out before you can diagnose, which means so much precious time can go by. Unfortunately, mom lost her battle after 6 short months in July of 2018. She was my best friend and one of the most wonderful people I had ever known. SHE is my reason for walking. I want to help ensure that no one ever hears the words: “You Have ALS” again.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can’t stop now. The key to a cure begins with you.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.