- For People with ALS
Where to find help
- Newly Diagnosed
- ALS Registry
- Clinical Trials
- Familial ALS
- Military Veterans
- Augmentative Communication
- Stories of Courage
Support Our Services
- Help Fight ALS
Our Chapter empowers people with Lou Gehrig's Disease and their families by offering a wide variety of programs and services. Our services are often changing and expanding as we grow, so please check back often to make sure you are taking advantage of everything we have to offer.
Our staff is available Monday through Friday to answer any questions you may have. Please don't hesitate to call or e-mail us for more information.
Our staff of social workers are available to educate and counsel by phone anyone in the community who is concerned about ALS. Particular support is available for families living with ALS.
Lisa Hoskins, MSW, LCSW, Director of Care Services and Advocacy:
Direct Line: 919-755-0409
Lynn Sanderson, BSW, Care Services Manager:
Direct Line: 336-757-2000
Margie Petrakis, RRT, RN, CCM, Care Services Manager:
Direct Line: 919-390-0120
Jocelyn Chrisley, MSW, Care Services Coordinator:
Direct Line: 919-390-0126
Claudia Beirne, Senior Care Services Programs Manager:
Direct Line: 919-390-0125
Why Come to ALS Support Groups?
Support groups exist entirely for you, the person with ALS, and your family or loved ones. Here is a list of some things ALS support groups provide:
Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness. Put these meetings at the top of your calendar; they belong to you. Your presence there will open doors you never knew existed.
For a list of the support groups we currently offer, please click here.
The grant program assists families in North Carolina with expenses that are not traditionally covered by insurance such as private insurance, Medicare, Medicaid and other assistance programs. It will cover, but is not limited to: home care assistance (respite), travel costs to ALS clinics and research, home modifications, auto modifications, communication devices, environmental controls and generators for invasive or non-invasive breathing assistance. Recipients may apply for two grants per year in the amount of $750 each.
For more information or to apply for a grant, please click here.
The Loaner Equipment Program operated by the North Carolina Chapter houses limited durable medical equipment in three locations throughout the state. The equipment includes rollator walkers, manual wheelchairs, transport wheelchairs and power wheelchairs, and is delivered and picked up free of charge. If and when the equipment is no longer needed, it can be returned to the Chapter for use by other person living with ALS.
For more information about borrowing or donating loaner equipment, please click here.
The Chapter care services staff is available for professional in-services to nursing facilities, home healthcare agencies, hospice and palliative care organizations. Our in-services utilize PowerPoint/video presentations and discussion.
For information on how to arrange an in-service training, please contact Lisa Hoskins at email@example.com.
The Care Connection Program is a way for the Chapter to help the ALS family organize those in their support system who have an interest in helping. Chapter care services staff train volunteer(s)on how to establish and run a ‘care group’ for the ALS family they know. People offer their time and talents while the ALS family is in control of who, when and how they help.
For information on how to arrange a care connection training, please contact Lisa Hoskins at firstname.lastname@example.org.
All of the services for our ALS families are available due to the generosity of many groups and individuals. By donating to our Chapter, you help us to help those families. Join a Walk team, plan an event that benefits the Chapter or just make a donation. As a non-profit, everything we do depends on our generous donors.
If you are interested in supporting our services, please click here.